Where to find more information on Chiari Malformation:

National Institute of Neurological Disorders and Stroke (NIH)

National Organization for Rare Disorders (NORD)

Chiari Malformation & Syringomyelia Handbook

American Syringomyelia & Chiari Alliance Project (ASAP)

Chiari & Syringomyelia Foundation (CSF)

Margaret Hackett Family Program at UChicago Medicine

Stanford Medicine Children's Health

 

Conquer Chiari:

https://www.conquerchiari.org/index.asp 

Chiari Malformation Resources- Weill Cornell Medicine 

https://neurosurgery.weillcornell.org/condition/chiari-malformation/chiari-malformation-resources